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PD Avengers is a patient-led organization, united in the purpose of ending Parkinson's disease. We raise awareness, engagement and hope.
We add urgency to the cause of ending Parkinson’s disease.
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Exploring the Unseen: Artwork Depicting Life with Parkinson’s
A new eBook titled What Parkinson’s Feels Like has been launched, capturing the emotional and physical reality of living with Parkinson’s disease through powerful illustrations. Published by artist and Parkinson's advocate Barbara Salsberg Mathews in collaboration with Parkinson’s Europe, this free resource is based on firsthand experiences from people with Parkinson’s worldwide.
Diagnosed in 2020, Mathews was inspired by vivid, crowdsourced descriptions from individuals around the globe. Her illustrations depict the nuances of daily life with Parkinson’s, from the struggle to control body movements to the challenges of completing routine tasks.
"This project shows we’re more than a list of symptoms; we’re people striving to live our best lives," says Mathews. "Through art, I wanted to help others see what we experience."
Larry Gifford, President of PD Avengers, highlights the significance of this project, stating, "The illustrations are relatable and deeply resonate with our community. They bring the realities of living with Parkinson’s to life for families, friends, and healthcare providers, fostering greater understanding."
The eBook is available to download for free in five languages (English, French, Italian, German and Spanish) on the Parkinson’s Europe website, with the option to leave a donation to Parkinson’s Europe, Parkinson Canada or PD Avengers.
A New Book About Parkinson’s
It’s Out of This World!
Authors Alexandra Boogers and Tine Van Bogaert created this book to help families discuss Parkinson’s disease with children. Through Alex’s journey, readers explore the condition, treatments like deep brain stimulation, and the importance of supporting Parkinson’s research, while sparking curiosity in science and technology.
NeuroNinja Comics:
The superhero with Parkinson’s disease
He is unsteady yet unshakable! He shakes up his enemies, but can’t overpower his greatest challenge - Parkinson’s!
NeuroNinja is the comic book superhero with Parkinson’s!
During dangerous deep brain stimulation surgery, Steve gains extraordinary super powers through a freak collision between an MRI machine and a quantum computer. NeuroNinja is Unsteady yet Unshakable! He uses his symptoms to defeat his enemies. But for all his strength and powers, the one force he can’t overpower is his Parkinson’s. Join the community and back us so we can share this joyride and save NeuroNinja! We are offering some super rewards, too! If you have Parkinson’s or know someone that does, back us and help bring NeuroNinja Comics into print! All support will go strictly toward this project.
Starry Skies, Cosmic Shakes follows Alex, a curious astronaut who notices a troubling shake in their arm. With help from their friend Sam and Dr. Twitchy, Alex learns they have Parkinson’s disease. Medicine helps for a while, but soon Alex needs a special brain surgery from Dr. Ganglia. After the procedure, Alex is back to exploring the stars and even discovers a new galaxy, showing that with support and courage, no dream is too big.
Latin Stars gather to raise money for Parkinson’s
During Latin Grammy Week on Wednesday (Nov. 13) at M2 Club in Miami, Los Producers party gathered nominees and winners such as Cimafunk, Fonseca, Juanes, Mon Laferte, Danny Ocean, Nicole Zignago, and more to raise awareness for Parkinson’s research.
The event featured memorable covers by artists like Luis Fonsi singing “Heaven” by Bryan Adams, DannyLux with Café Tacvba’s “Eres,” The Warning singing Alanis Morissette’s “You Oughta Know,” Joaquina rocking out to “Creep” by Radiohead, and Leonel García, who excited the crowd with “Take on Me” by A-ha.
The charity event, which raised $210,000, is part of the Michael J. Fox Foundation and also drew stars like Agirs, Bruses, Caloncho, Conociendo Rusia, Jay de la Cueva, and El David Aguilar.
Luis Fonsi performs at the Los Producers event at M2 Club in Miami, FL on November 13, 2024
Speech Accessibility Project
NOW RECRUITING IN CANADA!
The Speech Accessibility Project, led by the University of Illinois Urbana-Champaign's Beckman Institute, is working to make voice recognition tech better for people with different speech patterns and disabilities. They're teaming up with big names like Amazon, Apple, Google, Meta, and Microsoft to gather a wide range of speech samples.
This collaboration aims to make voice-activated systems more accessible and effective for everyone, no matter how they speak.
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