50 Simple Ways to Express Gratitude To Your Care Partner

Here’s an enhanced set of simple gratitude ideas for November, offering people with Parkinson’s easy ways to express appreciation for their care partners:

Write a thank-you note: Keep it simple and sincere, sharing specific things you appreciate.

Create a gratitude jar: Add a note each day highlighting something they’ve done that made a difference.

Give them a flower. A beautiful gesture of thank you for all you do.

Go on a photo walk together: Capture moments and places that bring you both joy.

Dedicate a social media post: Publicly acknowledge their impact on your life.

Prepare or order a surprise meal: Celebrate them with a special dinner.

Schedule a massage or foot rub for them: Help them relax and feel pampered.

Spend quality time doing something they enjoy: Show interest in their hobbies or pastimes.

Nominate them for an award or local recognition: Celebrate their dedication.

Break out the Scrabble board: Engage in a fun, lighthearted game together.

Arrange a surprise call from someone special: Help them connect with someone they miss.

Acknowledge the little things they do for you: Take a moment to verbally share your appreciation.

Organize a care partner gathering: A virtual or in-person meetup can offer community support.

Make a donation in their honor: Contribute to a cause that matters to both of you.

Organize respite support for them: Arrange for someone else to assist you for a few hours.

Plan a relaxing activity together: Unwind with something calm like yoga or a peaceful walk.

Take a hike: Embrace the outdoors with a shared adventure.

Handwrite a poem: Craft a few lines expressing what they mean to you.

Buy flowers or their favorite treat: Small gifts show appreciation.

Plan a surprise outing or adventure: Take them somewhere new or exciting.

Watch TV together, distraction-free: Enjoy each other’s company.

Hide a supportive message for them to find: Brighten their day with a surprise note.

Join them in a relaxing activity they enjoy: Bond over something calming.

Offer to help with a task: Lighten their load, even with something small.

Send a daily thank-you note or message for a week: Each day, share a specific reason you’re grateful.

Prepare a picnic: Enjoy a meal outdoors in a special setting.

Give a thoughtful, handmade gift: It could be something simple but meaningful.

Do the dishes without asking: A small chore that means a lot.

Plan a happy hour (home or out): Relax and unwind together with drinks or snacks.

Prepare a playlist of their favorite songs: Share it with them for a special evening.

Plan a quiet movie night: Pick their favorite film and enjoy it together.

Record a voice message: Share a special thank-you message they can listen to anytime.

Make a simple craft or handmade card: Small tokens can carry big meaning.

Cook a simple breakfast or coffee for them: Even small meals can be special.

Frame a favorite photo of the two of you: Add a short note on the back.

Plant a flower or small plant together: Something they can enjoy and watch grow.

Draw a simple picture or doodle for them: A fun gesture to make them smile.

Find an online class or activity they enjoy: Encourage their personal interests.

Create a custom crossword or word search puzzle: Fill it with words meaningful to you both.

Send a special text each morning or evening for a week: Start or end the day with gratitude.

Create a ‘coupon book’ of small favors: Simple gestures, like a foot rub or dishwashing.

Compile a list of their favorite quotes: Print it out as a personalized gift.

Help them reconnect with an old friend: Set up a call or help them write a message.

Plan a board game night: Enjoy a lighthearted activity at home.

Give them a daily reminder of their impact on you: A new compliment each day.

Offer to read to them from a book they love: Share the experience together.

Set up a cozy area for them to relax: Arrange a special space for their downtime.

Play or learn a card game they enjoy: Engage in some friendly, simple competition.

Arrange a “thank you” puzzle: Write a message and cut it into pieces for them to put together.

Record a short video message: Speak from the heart, capturing your appreciation.

These activities are meant to be accessible and meaningful, helping show gratitude in small but impactful ways.

Go to PD Avengers Care Partner Home Page

Go to Care Partner’s Shine Bright and pay tribute to your Care Partner

Global Bonds and Personal Growth: Reflections on the World Parkinson Congress 2023

by Tim Hague Sr.

Panelists on Activism and Advocacy at WPC2023 in Barcelona, Left to Right, Maria de Leon, Sharon Krischer “Twitchy Woman”, Larry Gifford, Tim Hague Sr., Omotola Thomas, Fulvio Capitanio, Sara Riggare — not shown Richelle Flannigan .

My first World Parkinson Congress was back in 2013 square on the heels of the momentous event of my year; my and my son’s win of The Amazing Race Canada. I tell you this to help you understand why I remember almost nothing of that congress except the people. You see my head was already in a completely overwhelmed state and the congress was a dizzying, bombardment of information and all things Parkinson’s from around the globe. I knew nothing of this event before attending. All I really knew when I arrived was that I would be speaking on the main stage for five minutes to some three thousand folks with connections to PD.

Third from left is Eli Pollard, Executive Director of World Parkinson Congress

That event and those five minutes changed my life.

My doctor and his team were there which totally surprised me as I had no idea why they would all be at the same conference as patients. Eli Pollard (of course!) left a lasting impression as this super woman who managed to put on a massive event like this nigh on single hand idly. Now, after four such events I remain mesmerized by her super human talents! There was Bob Kuhn, fellow PWP and of Parky the raccoon fame, who shared the stage with me that year. There was Jillian Carson physiotherapist, advocate and founder of the Parkinson Wellness Project out in Victoria, British Columbia, Canada. And so many more that could and should be remembered if time and space allowed.

My point here is that it’s always about the people. This congress it was about the friends, yes friends, from all over the globe whom I do believe I could drop in for a beer or a coffee should I have the good fortune to be in their country. Countries like India, Uganda, United Kingdom, France, across the USA, Canada, Norway, Germany, Nigeria, New Zealand, Australia, Ireland, Spain, South Africa, Scotland, Japan and, well, I think you get the picture. These many and varied people have inspired me, humbled me and provided the context forme to see and better understand this disease. Ultimately, they help me live better for having known them and a bit of their journey with PD.

There’s a little pizza commercial that says what makes their particular pizza so special is that it’s “all about the sauce”. In this case “it’s all about the people” it’s the incredible people I’ve met over these past twelve years that will keep me coming back again and again for as long as I am able. If we missed each other in Barcelona let’s make sure we do that coffee in, well, wherever next time is! I’ll look forward to hearing where the next congress will be and to seeing you there.

Live Your Best!

Tim

PD Avengers Assemble - July 2022

PD Avengers, if you missed July’s PD Avengers ASSEMBLE meeting, here’s the video.

GLOBAL ALLIANCE TO END PARKINSON’S DISEASE LAUNCHES NEW SYMBOL FOR PARKINSON’S AWARENESS

Vancouver, BC Canada – April 1, 2022 – More than 80 Parkinson’s disease organizations and thousands of advocates from 83 countries announce the launch of ‘The Spark,’ a new international symbol for Parkinson’s awareness, to increase conversation and public awareness around the world’s fastest growing neurological disease. The symbol will be promoted and shared around the world during World Parkinson’s Day on Monday, April 11, 2022.

The Spark, inspired by dopamine – a critical electro-chemical neurotransmitter that people with the disease are striving to retain – will be used to energize a global movement and inspire urgency, unity, and hope to end Parkinson’s Disease. 

“The who’s who of Parkinson’s combine forces under a new symbol to keep the disease top of mind for everyone. The Spark is intended to electrify a powerful movement changing how all of us think about this disease. We want to break the stigma around Parkinson’s. We’re leading a louder call to fund medical breakthroughs. And together – we’re striving to put Parkinson’s in the past,” said Larry Gifford, President and co-founder of Global Alliance to End Parkinson’s Disease (also known as the PD Avengers).

“We want to break the stigma around Parkinson’s. We’re leading a louder call to fund medical breakthroughs. And together – we’re striving to put Parkinson’s in the past”

— Larry Gifford, President of Global Alliance to End Parkinson’s Disease PD Avengers

THE INCREASING IMPACT OF PARKINSON’S ON INDIVIDUALS, FAMILIES, AND THE GLOBAL COMMUNITY CANNOT BE IGNORED.

●      Parkinson’s Disease is the fastest growing neurological condition in the world.

●      Parkinson’s is indiscriminate regarding gender, sex, ethnicity, age, and geography.

●      Up to 10% of People with Parkinson’s are diagnosed in their 40’s or younger.

●      Parkinson's is caused by a combination of genes, environmental and lifestyle influences. The interaction of all three components determines if someone will develop Parkinson's.

●      Currently, there is no cure.

●      The herbicide and pesticide Paraquat are among the toxins linked to increased risk of the onset of Parkinson’s disease. It is banned in dozens of countries including China and the UK, where they continue to manufacture the product. While a teaspoon is lethal for a human being, more 7-million pounds of Paraquat were used on crops in the United States in 2015 and that number is steadily increasing year after year.

●      Parkinson’s is a misunderstood disease, and the lack of awareness makes people with Parkinson’s vulnerable and discriminated against. People with Parkinson’s earn less money, have difficulty obtaining and retaining employment despite qualifications and ability. They often have to retire early. The symptoms of the disease, mean people with the disease are often mistaken for being intoxicated and in some countries are considered to be cursed by witches. Many live in constant pain. They often lose their voice, their confidence, the luxury of sleep and their ability to control their automatic functions, their limbs, and their future.

SHARE YOUR SPARK ON WORLD PARKINSON’S DAY

This World Parkinson’s Day, we are calling on those impacted by the disease to stand up, speak out and unite to end Parkinson’s. People can join our movement by sharing The Spark with friends, family and on social media channels on Monday, April 11, 2022.

Every organization, individual or group who want is encouraged to share The Spark in their campaign, event, or communications around World Parkinson’s Day and beyond. The Spark toolkit can be downloaded here worldparkinsonsday.com. People can either personalize The Spark or share one of dozens of pre-made graphics.

ABOUT THE SPARK’S DEVELOPMENT

The Spark was conceived by a coalition of global patient and advocacy organizations who are all seeking to end Parkinson’s Disease.

 “The EPDA is incredibly proud to be a part of this incredibly unique global coalition of Parkinson’s organizations. We all have the same goal: for the ’Spark’ logo to, over time, help the Parkinson’s community speak with one voice on World Parkinson's Day – thereby amplifying our own individual voices, and creating a bigger impact globally year after year. People with Parkinson’s and their families cannot wait for change to happen to them. We need to create that change ourselves, and we hope this logo will be an important step in that direction,” said Dominic Graham, Operations Director, European Parkinson’s Disease Association (EPDA).

“We know the power of the Parkinson’s community cannot be understated. It’s the spark of the community coming together in a multitude of ways, including through this global alliance of Parkinson’s organizations, which has transformed Parkinson’s research into what it is today. And it’s this community coming together that will help realize new breakthroughs that are right around the corner for people and families with Parkinson’s,” said Debi Brooks, CEO and Co-Founder of The Michael J. Fox Foundation for Parkinson’s Research.

“Parkinson’s is the fastest growing neurological condition in the world, and it needs to be recognised as an urgent health priority. I hope that this year’s World Parkinson’s Day will be the spark that creates a sense of urgency within international health agencies, governments, and leads to significant investment in to research for treatments that change the progression of Parkinson’s.  It is time to end Parkinson’s,” said Helen Matthews, Deputy CEO, Cure Parkinson’s

The Spark was designed in partnership with Franklyn (franklyn.co), a creative studio based in Brooklyn, New York. The six-month effort was comprehensive and engaged a global community of PD patients and advocates.

“This was a tall task as whatever symbol we crafted for the global PD community had to be simple, urgent, and tied to the disease itself. Creating a logomark that is also customizable and truly ‘open-source’ – anyone can download it, draw it, draw on it and use it to tell their own stories – is also what makes it powerful, personal, and deeply emotional,” said Michael Freimuth, the Co-Founder of Franklyn.

To share The Spark and join the movement to end Parkinson’s, visit worldparkinsonsday.com

We encourage all media to use The Spark and the digital assets found here, to help debut the symbol to audiences worldwide beginning April 1st, on World Parkinson’s Day and as a symbol of Parkinson’s Awareness when appropriate throughout the year.

A full list of members and links to the organizations are listed below and will be featured on the website: worldparkinsonsday.com.

Additional quotes below

 ###

Media Contact:

Bruce Claggett

bruce@switchboardpr.com

(604) 996-2256

PARTNER ORGANIZATIONS

Organizations which are supporting The Spark include (in alphabetical order):

1.      Alianza Iberoamericana de Parkinson (Spanish Speaking Countries)

2.     APDA American Parkinson's Disease Association (United States)

3.     APDA Massachusetts (United States)

4.     APDA Northwest (Pacific Northwest of United States)

5.     Asociația "Mai puternici decât boala Parkinson" (Romania)

6.     Associazione Italiana Giovani Parkinsoniani (Italy)

7.      BC Brain Wellness Program (Canada)

8.     Brian Grant Foundation (United States)

9.     Canadian Open Parkinson Network (Canada)

10.   Charco Neurotech (United Kingdom)

11.   Comitato Italiano Parkinson (Italy)

12.   Con P de Parkinson (Spain)

13.   Cure Parkinson's (United Kingdom)

14.   Davis Phinney Foundation (United States)

15.   Empower Parkinson's  (Canada)

16.   Ending Parkinson's Disease Book  (United States & Netherlands)

17.   Entraidons-nous (French-Canadian/Quebec, Canada)

18.   EPDA | European Parkinson's Disease Association  (Europe)

19.   European Parkinson’s Therapy Centre (Italy)

20.  Fuerte Es La Vida, Parkinson No Limits (Spain)

21.   Hilde-Ulrichs Foundation (Germany)

22.   IMPACT Parkinson's (British Columbia)

23.   IPDGC - international Parkinson Disease Genomics Consortium – (Africa)

24.  It's Not Funny (Australia)

25.   LARGE-PD Latin American Research Consortium of Parkinson's Disease (Latin America)

26.  Living Better with Parkinson’s (Canada)

27.   LSVT Global (United States)

28.  Mediflix (United States)

29.  Move4YPD (Netherlands)

30.  Neuro Heroes (United Kingdom)

31.   Pacific Parkinson's Research Centre (British Columbia)

32.   Pacific Parkinson's Research Institute (British Columbia)

33.   Parkinson Alliance (United States)

34.  Parkinson Association of Alberta (Canada)

35.   Parkinson Canada (Canada)

36.  Parkinson Place (United States)

37.   Parkinson Society British Columbia (Canada)

38.  Parkinson Society Nova Scotia (Canada)

39.  Parkinson Society Southwestern Ontario  (Canada)

40.  Parkinson Wellness Project - PWP  (United States)

41.   Parkinson Wellness Project - PWP  (Canada)

42.  Parkinsong (Austria)

43.  Parkinsonline (Austria)

44.  Parkinson's Africa (Africa)

45.  Parkinson's Alliance (United States)

46.  Parkinson's Art (United Kingdom)

47.   Parkinson's Association of West Michigan (United States)

48.  Parkinson's Australia (Australia)

49.  Parkinson's Disease Patients Welfare Society (Kolkata, India)

50.  Parkinson's Foundation (United States)

51.   Parkinson's International Foundation (United States)

52.   Parkinson's Resources (Pacific Northwest of United States)

53.   Parkinson's Si Buko Uganda (Uganda)

54.  Parkinson's UK (United Kingdom)

55.   Parkinson's Unity Walk (United States)

56.  Parky Life (United Kingdom)

57.   PD Avengers Scotland (United Kingdom)

58.  PD Avengers Puerto Rico (Unincorporated Territory of the United States)

59.  PD Buzz (United States)

60.  PD Warrior (Australia)

61.   Ping Pong Parkinson (United States)

62.  PMD Alliance | Parkinson & Movement Disorder Alliance (United States)

63.  Power Over Parkinson's (United States)

64.  Rosy Gallery (Tokyo, Japan)

65.  Schluss Mit Parkinson PD Avengers (Germany)

66.  Shake it Up (Australia)

67.   Shaky Nation (United States)

68.  Shaky Radio (United Kingdom)

69.  Sport Parkinson's (United Kingdom)

70.   Spotlight YOPD (United Kingdom)

71.   Stop, Parkinson România ! (Romania)

72.   STOPD - (NY & LA) - Theatre for PD (United States)

73.   Surrey Neuroplasticity Clinic (Canada)

74.   The Michael J. Fox Foundation (United States)

75.   The Parkinson Games (Netherlands)

76.   Tightrope Impro Theatre – Improv for Parkinson’s (Canada)

77.   Trepetlika Parkinson's Disease Society of Slovenia (Slovenia)

78.   Twitchy Woman (United States)

79.   University of Dundee (United Kingdom)

80.  Unshakeable MD (Canada)

81.   U-Turn Parkinsons (Canada)

82.  Voice Aerobics, LLC (United States)

83.  When Life Gives You Parkinson's (Canada)

84.  Wikiparky.tv (Italy)

85.  Women's Parkinson Project (Ireland & United States)

86.  World Parkinson's Congress (Spain)

87.   World Parkinson's Coalition (United States)

88.  World Parkinson's Program (Canada)

89.  Yes! And Exercise (United States)

90.  Yuvedo Foundation (Germany)

QUOTES FROM MORE ORGANIZATIONAL LEADERS SUPPORTING THE NEW SYMBOL FOR PARKINSON’S DISEASE AWARENESS

“The Davis Phinney Foundation is proud to participate in this global partnership to increase awareness of Parkinson’s. Awareness, health literacy, and community support are just as critical to our mission of helping people with Parkinson’s live well today as they are to ultimately ending Parkinson’s, and we stand in solidarity with the call to increase advocacy, reduce stigma, and change the way people live with Parkinson’s.”

- Polly Dawkins, Executive Director, Davis Phinney Foundation

“Parkinson Association of Alberta is a proud member of a united international community of people living with or loving someone with Parkinson disease. On World Parkinson's Day 2022, we join together to spark conversation and understanding of the condition and those affected.”

- Lana Tordoff, Executive Director, Parkinson Association of Alberta

“‘Don't tell anyone I have Parkinson's!'. Over and over again I hear these words. Stigma stops people going out, exercising, getting treatment and socialising which leads to inactivity and depression. It seals their fast decline. I will not hide! I exercise and get back what I lost. I will not except stigma! I am worthy of love just as much as anyone.”

- Christine Jayachandran, Founder, Alianza Iberoamericana de Parkinson

“We are excited to follow the fear, failure, and fun as a group, sparking new connections and resources for all to connect and live better together!”

- Robert Cochrane, CEO/Founder, Yes, And…eXercise!

"It is only through global collaboration that we will find the answers to prevent, slow and stop Parkinson's in it tracks. Let's unite and light up the Spark to put an end to Parkinson's."

- Clyde Campbell AM, Founder & CEO of Shake It Up Australia Foundation

“LSVT Global, Inc. is committed to efficacious rehabilitation for PD globally.”

- Cynthia Fox, PhD, CEO, LSVT Global

"We at Shaky Nation are delighted to be a small part of World Parkinson's Disease Day 2022 and the unveiling of the Spark! If you haven't yet found a tribe of likeminded people with Parkinson's Disease, come check us out. Let's make some Sparks!"

- Steve Phillips, founder of Shaky Nation

“Spark is a brilliant idea. I hope it will spark a sleeping community around the globe into a wildfire of activity that will lead us into slowing down the progression and finding a cure as soon as humanly possible. We didn't conquer Parkinson, but we are conquering the fear of Parkinson. Tulip never impressed me. SPARK does it for me!”

- Nenad Bach, founder & president PingPongParkinson®