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PD Avengers
PD Avengers is a patient-led organization, united in the purpose of ending Parkinson's disease. We raise awareness, engagement and hope.
We add urgency to the cause of ending Parkinson’s disease.
“WHAT PARKINSON’S FEELS LIKE”
NOW AVAILABLE ON AMAZON!
A new eBook titled What Parkinson’s Feels Like has been launched, capturing the emotional and physical reality of living with Parkinson’s disease through powerful illustrations. Published by artist and Parkinson's advocate Barbara Salsberg Mathews in collaboration with Parkinson’s Europe, this free resource is based on firsthand experiences from people with Parkinson’s worldwide.
Diagnosed in 2020, Mathews was inspired by vivid, crowdsourced descriptions from individuals around the globe. Her illustrations depict the nuances of daily life with Parkinson’s, from the struggle to control body movements to the challenges of completing routine tasks.
"This project shows we’re more than a list of symptoms; we’re people striving to live our best lives," says Mathews. "Through art, I wanted to help others see what we experience."
The eBook is available to download for free in five languages (English, French, Italian, German and Spanish) on the Parkinson’s Europe website, with the option to leave a donation to Parkinson’s Europe, Parkinson Canada or PD Avengers.
Register Today! It’s Free.
Dr. Gilbert Hosts: “The Many Forms of Carbidopa/Levodopa" Carbidopa/Levodopa is the mainstay of treatment for the motor symptoms of Parkinson’s disease (PD) and can be very effective in controlling the stiffness and slowness that are so characteristic of PD.
And there are many formulations of this medication available, including two new options that were recently approved by the FDA, which can make the choices very confusing.
APDA is here to help you make sense of it all. Join us on January 8 at 1 PM ET / 10 AM PT as Dr. Eleni Okeanis Vaou, a Movement disorders specialist, discusses the many forms of carbidopa/levodopa and brings clarity to this topic.
EPA Takes Action On Harmful Chemical TCE
The Environmental Protection Agency (EPA) is ramping up efforts to protect people from
the dangers of trichloroethylene (TCE), a chemical commonly found in industrial and
consumer products. TCE, used in products like brake cleaners, furniture polish, dry cleaners
and arts and crafts sprays, has been linked to serious health risks including increased
risked of Parkinson’s disease. To address this, the EPA has introduced strict new rules under
the Toxic Substances Control Act (TSCA).
New Rules to Limit TCE
This month, the EPA issued a final rule banning the production, import, and sale of TCE for most
uses. This rule will take effect within one year for most products, protecting consumers, workers,
and communities from exposure.
For some specialized industrial uses, the ban will be phased in over a longer period. These industries will need to implement strict safety measures, such as a Workplace Chemical Protection Plan, to limit how much TCE workers breathe in.
Safer Workplaces
For industries where TCE use continues temporarily, the EPA has set a new exposure limit to reduce health risks. This change, based on public feedback, will lower workplace TCE exposure by 97%. However, even these uses will eventually be banned.
Some of the industries allowed more time to transition include:
Cleaning parts for aircraft and medical devices.
Manufacturing battery separators and refrigerants.
Maintaining equipment for transportation, security, and defense systems.
These exceptions aim to avoid disruptions to national security and critical infrastructure
while industries find safer alternatives.
Why This Matters
The new rules are part of a larger effort to reduce the risks posed by dangerous chemicals. In its 2020 evaluation, the EPA found that nearly all of TCE’s uses contributed to significant health risks. These new actions aim to reduce exposure and prevent further harm.
For more information, you can contact the EPA through their hotline at (202) 554-1404 or email TCE.TSCA@epa.gov. You can also visit regulations.gov and search for public docket EPA-HQ-OPPT-2020-0642 to stay updated on this issue.
By taking these steps, the EPA hopes to create a safer future and protect communities from the harmful effects of TCE.
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Speech Accessibility Project
NOW RECRUITING IN CANADA!
The Speech Accessibility Project, led by the University of Illinois Urbana-Champaign's Beckman Institute, is working to make voice recognition tech better for people with different speech patterns and disabilities. They're teaming up with big names like Amazon, Apple, Google, Meta, and Microsoft to gather a wide range of speech samples.
This collaboration aims to make voice-activated systems more accessible and effective for everyone, no matter how they speak.
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